Tag Archives: tests

It’s been a very strange year…

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It’s just a few days shy of the one-year anniversary of experiencing the still unexplained tachycardia that started me down what feels like a very long and often unfulfilling series of medical appointments and major life changes. As June 28th looms larger on the horizon, I’m still not sure what to make of the experience. Maybe it’s not surprising to anyone else but learning that I am not actually indestructible came as something of an unwelcome surprise. 

I won’t say that I ever considered myself particularly healthy, but I always felt robust and strong as a bull moose. I rarely gave much thought to my physical limits. This experience has forced me to confront both human fragility and the illusion of invincibility I once held. Every medical appointment since has been a reminder of my body’s unpredictability, and despite numerous tests and consultations, the cause of my tachycardia remains elusive. This uncertainty has become a constant background noise in my life.

Each day carries a mix of hope and frustration, as I swing between optimism that the next appointment might bring answers and the annoyance of another inconclusive result. It’s a challenge to remain patient and positive when the path to wellness feels never-ending. Often, the struggle between my own ears is as or more problematic than the physical one.

As June 28th approaches, marking a year since this parade of fuckery, I find myself reflecting on the life changes that have accompanied it. Adjusting my lifestyle to accommodate both the knowns and the unknows has meant altering routines that felt as natural as breathing. From dietary changes and new exercise regimes to prioritizing rest and stress management, the shifts have been both major and minor but always impactful. The experience has reshaped my understanding of health and well-being and the surprisingly delicate balance required to maintain it. 

A year later I wish I had better answers than, “well, as long as the incidents aren’t recurring, keep doing what you’re doing.” Patience in the face of uncertainty has never been one of my strengths. This experience hasn’t improved that at all. As I gain some distance from the events that launched this ridiculousness, pondering on what it all means and what’s going to happen has receded to manageable proportions rather than filling a dominate place in my daily thoughts. That has gone a long way to letting me make the mental leap to getting back to what now passes for normal.

What Annoys Jeff this Week?

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1. The diminishing list of things I care about. The older I get, the fewer things I seem to give a shit about. As a kid, I guess we all want to be popular. I’ve long since given that up. I used to care about politics. Now? Yeah, the more these greybeards talk, the less I listen. I used to love to travel. Today? Shit. I can’t be bothered to drive across town. The number of things I legitimately care about can probably be listed on one hand – and some days I wouldn’t even need all the fingers. It seems all I really want now is quiet and as little fuss about anything as possible. I’m not sure that’s necessarily a bad thing, but occasionally it feels like I should want to be more engaged. Fortunately, those feelings don’t usually last very long.

2. Medical science. We like to think we’re so advanced. I mean it’s great that we’ve surpassed herbs and leeches, but for the better part of the last year, the answer to a lot of my medical questions has been “well, we can’t replicate what you experienced and the tests we’ve given you are inconclusive, so keep doing what you’re doing and see me again in six months.” Look, I’m thrilled that there isn’t some kind of flashing neon warning sign popping off after whatever tests they’re doing, but in my more anxiety filled moments, it’s hard not to feel a little bit like a ticking time bomb.

3. Congress and technology. If there’s anything more useless than a bunch of geriatrics “carefully crafting” legislation about how current and future technology should be used, I have a hard time thinking of what it might be. Ask the average Representative to sign in to TikTok, or any other app of your choice, and I’m quite sure there’s a better than average chance you’ll get a blank stare. I’m not out here saying social media giants are innocent victims here, but I have deep reservations about issues surrounding the future of technology in America being decided by a group whose average age is approaching sixty and who have not demonstrated any particularly deep understanding of the actual issues involved. Then again, I don’t suppose we can really expect Congress to apply any academic rigor to this when they don’t do likewise with any other substantive policy issues.

Easing towards the baseline…

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It wasn’t a great summer for reading. Honestly, it wasn’t a great summer for anything. From July through September, I had no attention span to speak of. “Long form” TiKToks pressed my abilities to focus. Anything I was trying to get done had to be taken down in extraordinarily short chunks. For someone who normally had the ability to sit down and lose three hours reading a book, it was not an ideal arrangement. Books that would have normally gone back on the shelf inside a week lingered on the nightstand for a month or more.

I’m happy to report that October, even though the 10 days of the great plague, has shown decided signs of the situation improving. I’m nowhere near back to form, but I’m at least finding it possible to sit down for an hour at a clip and really get into something. 

I knew I was off my stride, but I’m just now beginning to realize just how far off I was feeling. I don’t mind telling you that I spent a lot of the summer in full bore worry mode – concerned about my health, wondering when or if I’d stop feeling like hot trash, scared that it was just going to be what post 45th birthday life was going to be. 

None of my issues have really gone away – or even yet been properly diagnosed – but I find that initial fear of the unknown is increasingly giving way to annoyance. I can only assume that’s a positive sign since annoyed is practically my universal default setting. Maybe I’m starting to ease back towards the baseline. 

I’m doing everything the medicos have told me to do, so aside from “wait and see” and showing up for more follow-on testing when it’s called for, it’s well past time to start dragging myself up off the mat… even if my head is stuck firmly on playing out all the possible “what if” scenarios. 

What Annoys Jeff this Week?

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1. Results. I’m a reasonably intelligent man with a fairly analytical mind, but I’m at a loss for what to do when results from something like an MRI drop into my online patient portal long before my doctor has a chance to look at and comment on them. As wide as my academic interests are, it’s never ranged as far as internal medicine, so the reports end up being a lot of gibberish with lines, arrows, and color codes that mean precisely nothing to me. That, of course, doesn’t prevent me from using Google to try gleaning a bit of understanding… which never results in anything other than low grade panic or mild confusion. I can’t believe I’m saying this, but I almost miss the olden days when the doctor received the report and the patient didn’t know dick about it until the medical professionals called to explain what’s what. I’m not at all sure this current model of complete transparency is helping me in any way.

2. Retirement. In my little slice of Uncle’s big green machine, there are 3 people who do more or less what I do. We’ve been a decent little team for the last half a decade or so. One of the three (lucky bastard) is retiring in a few days. His backfill is nowhere in sight. With three people, in all but the most extraordinary circumstances, we could work around everyone’s schedules and keep the trains running on time. With two, well, I’ve already identified two days that’ll be listed with “no coverage” in the next two months. That number will explode when the other guy adds his scheduled time off to the mix. All of that’s before we’ve even talked about the week or two gap for Christmas and New Year’s. None of those issues should be surprising. We’ve been warning the bosses about it for months. But not to worry… there’s allegedly a “temporary” fill-in coming and the bosses are going to hire a permanent replacement with all the speed and agility the U.S. Government is famous for displaying. With the pace at which the bureaucracy moves, I don’t expect to see either of those things happen until well after the new year, if ever. The only thing I know for sure is that for the foreseeable future, there’s going to be 24 manhours per day of work to do and only 16 manhours of personnel on hand to do it. The math, as they say, just doesn’t math. I know I won’t magically be doing an extra 4 hours of whatever every day, so I reckon the powers that be should probably get prepared for a diminished baseline of productivity and discovering that they’re just going to have to wait until we get around to some things. That’ll go over like a fart in church, but this was an issue that could have been addressed any time in the last six months…  so, I’ll be damned if I’ll be treating the inevitable result of bureaucratic fuckery as any kind of emergency for me. 

3. Exercise. Everyone on the internet loves to tell you that “once exercise becomes part of your routine, you’ll love it.” Maybe that’s true for them, but for me, I can assure you that no, the fuck I will not. Every daily walk or session on the exercise bike is 30-40 minutes I’m allocating under protest, because it’s sucking up an incredibly finite resource that I’d much rather put towards reading, or writing, or anything that I might even partially enjoy. Maybe it’s better than being stabbed in the kidney, but as something to pass the time, exercise is easily the least enjoyable part of my day. I’ll do it because it’s being required of me by someone who has far more knowledge about modern medical theory and practice than I have. Still, there isn’t a power on earth or in heaven that can convince me I’m having a good time. 

Diagnostic tests, doctor shopping, and medical snobbery…

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Since my original diagnosis of “probable SVT” way back in July took place under the umbrella of the ChristianaCare hospital system over in Delaware, my first appointment with cardiology was also made within their system. That was fine. Their main campus is reasonably well reviewed and I could get seen by a cardiology nurse practitioner in August, which I’ve found out through this process is a fast turnaround for a new cardiology patient who isn’t inactively laying in a hospital bed. 

In the intervening days and weeks, though, I had a follow up with my primary care doctor, who operates as part of the Johns Hopkins system. He was less enthused about my decision to use Christiana for my cardiology needs – explaining that their cardiology department, while fine, is “not ranked” whereas Hopkins cardiology is currently ranked 13th in the nation with the hospital consistently ranking very near the top of any list of “America’s best hospitals” that’s ever put together.

Yes, my primary care doctor is a medical snob.

Despite his cajoling, I kept my original appointment, which led through a series of tests and reports that I was going to need anyway. I also reached out to Hopkins Cardiology to get myself on their waiting list for new patients and ended up with an appointment scheduled deep into October. It wasn’t ideal, but since I was going through all the preliminary tests and could then hand over a pretty good sized file, the timing wasn’t a major issue for me. I was able to take advantage of their wait list option to get my first appointment in the books last week – with a guy who has been practicing for 40+ years and has the look and feel of someone who has seen just about everything. In other words, he’s exactly the guy I want even if all we’re doing at the moment is preventative and exploratory. 

With all other things being equal, if being able to access some of the best cardiologists in the country means driving 45 minutes west instead of 25 minutes east, ultimately it feels like not much of a decision at all. 

It turns out, like my primary care doctor, I too am a medical snob.

So, I’m going all in. My optometrist recently retired. Instead of going over to the doctor that took over his practice, I’ll let Hopkins run the show for my eyes too. I’ve got my first appointment set up with the closest branch of the Wilmer Eye Institute later this year. That puts all but one doc under a single banner… and when the time comes sometime in 2024, I’ll bring that one into the fold too.

All of these new faces on my medical team are a little further away than I’d like, but I feel like what I’ll lose in adding a few minutes of extra travel time, will pay me back in the convenience of having them all working under the same organization. I was woefully unprepared for the level of coordination I’d need to do myself when my primary care doc and everyone else had electronic records systems that refused to communicate with each other. 

I’m in no way fool enough to believe that being “nationally ranked” is any guarantee of better outcomes. For now, it appears that most of my problems are fairly benign, but should something become more involved or I develop a novel condition over time, I’m going to put my faith in the big name going forward. Hopefully they’re not just riding their 135-year-old reputation. 

Some people would take this opportunity to rail against the American healthcare system. Undoubtedly, it has challenges – but I’ve been absolutely amazed by the level of services and the array of options that have been presented to me over the last three months. Don’t think for a moment I’ve failed to realize my great good fortune to have both the geographic proximity to one of America’s great medical centers and an insurance plan that makes walking through their doors possible. There hasn’t been a day go past recently when it hasn’t been at the forefront of my thoughts.

On the day after…

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Maggie has been home from her adventure at the emergency vet’s office for a little more than 24 hours now. She’s sleepy after a day of being poked and prodded on top of not feeling well – and I think she wishes Jorah would leave her alone to rest quietly, but she’s even putting up with his periodic efforts to annoy her. I think she’s reached the point in her recovery where the biggest issue is her obvious disgust at how little boiled chicken and rice is put in her bowl at meal time. 

After loads of bloodwork, a few x-rays, and plenty of diagnostic back and forth with the vets, it seems the final reason for violent sickness is going to be “unknown.” Off the record, both the vets and I agree that the most likely cause is having found and devoured something tasty, but moderately toxic while patrolling the yard. If you’ve ever had the opportunity to live with a Labrador, you’ll understand that “she probably ate something” is a perfectly reasonable rationale for illness. 

I never rest well when any of these fuzzy little bastards is sick, so hopefully this one is well and truly on the mend… again.